GENETIC RESEARCH FOR GUBRIENKO NAZAR. THE FAMILY IS IN DESPAIR!
Nazar is my mother's universe. The only long-awaited son.
Nazarchyk was born at 37 weeks with a heavy rapid birth with umbilical cord entanglement, but cried out and everything seemed to be fine... But bilirubin encephalopathy occurred, hence 1.5 months in intensive care, convulsions, respiratory arrest, etc.
Nazar ate through a tube, gaining weight poorly. Within a year in the hospitals, the parents finally heard the verdict of the doctors - cerebral palsy. Although the head of the neurology department himself was not sure of the diagnosis. What exactly the boy is sick is still a mystery, despite a bunch of genetic tests in Kyiv and Kharkiv.
"Despite the disappointing forecasts, we have achieved relief," writes mother Elena. "Thanks to constant medical support and rehabilitation, Nazarchyk gradually learned to chew on his own, his back was strong, his cramps stopped; his son began to understand us better.
Nazar has grown, and his character is being formed. The son has his favorite cartoons and books (his favorite was a collection of poems about Aunt Behemoth). Together we draw and sculpt with plasticine. Nazar loves to walk in the fresh air, to observe nature as a real esthete!
Unfortunately, my son still has a problem with weight gain, with the ability to talk and take care of himself... Since May, his health has deteriorated: poor sleep, mood swings, poor electrocephalogram and MRI ...
So our neurologist advised a repeat molecular genetic test".
The family does not have the funds to pay for such expensive genetic tests. But they will help to establish the true diagnosis of Nazar! Please help the Gubrienko family!
Name: Gubrienko Nazar
Date of birth: 09.08.2013
Diagnosis: Сerebral palsy. Double hemiplegia, significant movement disorders. Symptomatic epilepsy. Delayed psychomotor development
The purpose of the project: to raise UAH 20,900 to pay for molecular genetic research
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