7-year-old Anya, who has a rare disease, is learning new skills. Help her reach the Neurophysiology Centre!
Anya Chaban was born with a congenital brain defect and a rare orphan disease known as FG syndrome. This condition is so uncommon that there is no established medical protocol for its treatment. Since birth, Anya has attended rehabilitation centres and worked intensively with specialists.
The syndrome is associated with defects in most cases, resulting in Anya receiving multiple diagnoses. These include infantile autism, characterised by qualitative impairment in reciprocal social interaction and communication, level 1 speech underdevelopment, motor disorders, and moderate intellectual disability.
Anya is a happy girl who is open to new experiences. She continues to receive intensive psycholinguistic development classes with rehabilitation specialists. Unfortunately, at 7, she still does not speak at a level that enables her to communicate with her peers.
Today, Anya knows up to 20 words but cannot care for herself independently. Rehabilitation specialists, speech therapists, dermatologists, and psychologists assisted her in acquiring each skill. Each new rehabilitation session brings further progress, so we can't stop. Help Anya reach the International Centre for Rehabilitation and Neurophysiology!
Full name: Anna Chaban
Date of birth: 29/12/2017
Diagnosis: Childhood autism. Underdevelopment of expressive speech. Dysarthria. Dyslexia. Mild cognitive deficiency. Dyspraxia. Minimal cerebellar insufficiency. Generalised muscle hypotension syndrome.
The goal of the project: to raise UAH 25,000 to pay for the rehabilitation course at the International Rehabilitation & Neurophysiology Centre
REQUIREMENTS FOR PROVIDING CHARITY AID:
BENEFICIARY: CF "DOBRODIY" CHARITY EXCHANGE
EDRPOU (National State Register) 39308149
IBAN UA553282090000026002000025224
PIVDENNYI BANK \ code 328209
PAYMENT DETAILS: "Donation for Anna Chaban (project No. 1720)"
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