
Seven-year-old Bohdan, who has a rare genetic disease, is waiting for rehabilitation. Help a child from a family of forced migrants!
Bohdan Aldabayev is seven years old and has Smith-Lemli-Opitz syndrome, a rare genetic disorder. This severe autosomal recessive condition involves a metabolic disorder and leads to delays in physical, psychomotor, and mental development.
In the early years of his life, Bohdan gained weight slowly and developed at a significantly later stage than usual. Many tests conducted at various medical centers over a prolonged period failed to identify the cause of his condition. It was only in 2019 that he received a correct diagnosis at a clinic in Turkey, where a geneticist prescribed effective treatment.
Since then, Bohdan has consistently attended rehabilitation sessions and followed a gluten-free and lactose-free diet. He has achieved some positive results, but there is still considerable work to be done. His family lived in Pokrovsk, but they were forced to flee their hometown because of the war: their home was destroyed. Help Bohdan get treatment!
Full name: Bohdan Aldabaiev
Date of birth: 14/06/2018
Diagnosis: Smith–Lemli–Opitz syndrome. Hypotrophy. Delay in postural and motor development. Expressive-receptive language underdevelopment. Mild cognitive impairment. Dysfunction of the emotional-volitional and communicative spheres with manifestations of aggression and self-aggression. Dyssomnia.
Project goal: to raise UAH 25,000 to pay for a rehabilitation course at the International Rehabilitation & Neurophysiology Centre
REQUIREMENTS FOR PROVIDING CHARITY AID:BENEFICIARY: CF "DOBRODIY" CHARITY EXCHANGE
EDRPOU (National State Register) 39308149
IBAN UA553282090000026002000025224
PIVDENNYI BANK \ code 328209
PAYMENT DETAILS: "Donation for Bohdan Aldabaiev (project No.1769)"
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