Three-year-old Evelina has a rare genetic disease and requires rehabilitation. Please support the child!
Evelina Zakharchuk was diagnosed with a rare genetic disorder — Rett syndrome — at 1 year and 8 months. By that time, she had not yet started walking and was unable to stand independently. From birth, she exhibited signs of physical and intellectual developmental delays.
Evelina now has impaired coordination and balance, sensory deficiency, reduced understanding of spoken language, and problems with her vision and gastrointestinal tract. She is unable to care for herself. She is gradually acquiring new skills, attending rehabilitation courses, and working with specialists.
Currently, there is no available treatment for this disease, except for experimental gene therapy under development in the United States. Evelina is a strong girl eager to learn about the world. She requires regular rehabilitation activities to support her development and help her maintain her physical and intellectual abilities. Support Evelina!
Full name: Evelina Zakharchuk
Date of birth: 07/01/2022
Diagnosis: Rett syndrome, X-linked dominant inheritance. Dysfunction of pelvic organ function. Marked delay in mental and speech development.
The goal of the project: to raise UAH 25,000 to pay for the rehabilitation course at the International Rehabilitation & Neurophysiology Centre
REQUIREMENTS FOR PROVIDING CHARITY AID:
BENEFICIARY: CF "DOBRODIY" CHARITY EXCHANGE
EDRPOU (National State Register) 39308149
IBAN UA553282090000026002000025224
PIVDENNYI BANK \ code 328209
PAYMENT DETAILS: "Donation for Evelina Zakharchuk (project No.1781)"
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