Ten-year-old Marharyta, who has a rare genetic disease, requires support and assistance!
Marharyta Brychok has Smith-Lemli-Opitz syndrome, a rare congenital genetic disorder. Smith-Lemli-Opitz syndrome is a hereditary condition caused by a metabolic defect. Marharyta's mother had a perfectly normal pregnancy and gave birth without any complications. However, the child was born very small for her gestational age.
Therefore, after birth, Marharyta was taken to the neonatal pathology department, where she gained weight over two weeks. After being discharged from the hospital, she was fed through a tube and later underwent stomach surgery. It was only after three years of constant examinations and doctors' assumptions that she received an actual diagnosis.
Marharyta is now 10 years old, and her lifelong struggle continues. Due to her delayed physical and psychomotor development, every step and tiny habit she learns is the result of hard and persistent effort. Marharyta is hardworking and cheerful. She loves swimming and adores animals. Help the girl access rehabilitation!
Full name: Marharyta Brychok
Date of birth: 14/09/2014
Diagnosis: Smith–Lemli–Opitz syndrome, autosomal recessive mode of inheritance.
The goal of the project: to raise UAH 25,000 to pay for the rehabilitation course at the CORRECTIONAL AND REHABILITATION CENTER “BODY & BRAIN”
REQUIREMENTS FOR PROVIDING CHARITY AID:
BENEFICIARY: CF "DOBRODIY" CHARITY EXCHANGE
EDRPOU (National State Register) 39308149
IBAN UA553282090000026002000025224
PIVDENNYI BANK \ code 328209
PAYMENT DETAILS: "Donation for Marharyta Brychok (project No.1786)"
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