Eight-year-old Maria with epilepsy needs costly diagnostics and therapy adjustment. Support her!
Maria Shabatina has had sleep problems since birth. She was restless and experienced developmental delays. By nine months old, Maria's epilepsy symptoms fully manifested — she endured painful spasms.
Since then, she has required round-the-clock supervision. The challenging process of improving her condition involves costly examinations, medication choices, genetic testing, monitoring key indicators, strict diets, and regular rehabilitation.
Maria's mother raises her alone and is always there to support her through this difficult time. In addition to her primary diagnoses, Maria has poor eyesight and strabismus, but her neurological condition does not yet permit surgical correction.
Maria's case is complicated: she has two genetic disorders. The main goal now is to reach a state of remission or, at least, to reduce seizures and avoid intensive care. Maria takes four anticonvulsant drugs, but only one of these is currently available in Ukraine.
Maria enjoys talking with children, loves soap bubbles, asks interesting questions, and is preparing for Year 3 at a special school. Maria must undergo a VEEG examination and adjust her medication. Support the child!
Full name: Mariia Shabatina
Date of birth: 08/03/2017
Diagnosis: Genetic syndrome (unspecified). Genetic epilepsy. History of epileptic spasms. Hyperkinetic conduct disorder. Congenital partial optic nerve atrophy and hypoplasia. Concomitant alternating convergent strabismus. Horizontal medium-amplitude nystagmus. Mild hypermetropia in both eyes with astigmatism.
The goal of the project is to raise UAH 19,100 to cover the cost of diagnostics at the "Epi.net" clinic.
REQUIREMENTS FOR PROVIDING CHARITY AID:
BENEFICIARY: CF "DOBRODIY" CHARITY EXCHANGE
EDRPOU (National State Register) 39308149
IBAN UA553282090000026002000025224
PIVDENNYI BANK \ code 328209PAYMENT DETAILS: "Donation for Mariia Shabatina (project No.1809)"
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