7-year-old Veronika has a rare genetic disease and needs enteral feeding equipment! Please help her!
Veronika Vynnyk has had a rare genetic disease—Dravet syndrome—since her very early age. This is one of the most severe forms of epilepsy in children. This dangerous disease often causes permanent psychomotor impairments and can sometimes have fatal consequences.
Veronika is now 7 years old, and every day of her life is a constant challenge. She continually receives medication therapy and works with specialists. The optimal selection of medications has helped reduce her epileptic seizures. Veronika underwent gastric fundoplication and is now fed through a gastrostomy.
The child continues treatment and recovery at home. To ensure Veronika receives all the necessary nutrients, the family needs to purchase some medical equipment for enteral nutrition, such as a low-profile gastrostomy, along with medications, consumables, and a compressor inhaler. Please support Veronika!
Full name: Veronika Vynnyk
Date of birth: 31/01/2019
Diagnosis: Generalized idiopathic epilepsy and epileptic syndrome. Genetic epilepsy, SCN1A gene mutation (Dravet syndrome). Gastroesophageal reflux disease (GERD). Erosive fibrinous esophagitis of the lower third of the esophagus. Status post gastrostomy (gastrostomy tube in situ). Aspiration bronchopneumonia.
The project's goal is to raise UAH 52,000 to buy medicines, consumables, and medical supplies.
DETAILS FOR PROVIDING CHARITABLE ASSISTANCE:
Recipient: Charitable Foundation “Charity Exchange ”Dobrodiy" EDRPOU 39308149
IBAN UA553282090000026002000025224 at AB “PIVDENNY” MFO 328209
Payment purpose: “Charitable contribution for Veronika Vynnyk (project No. 1865)”
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